Hi Everyone ❤️
I hope it’s okay to share this here. We’re a UK family and our little boy, Ralph, was born with a rare and incredibly painful genetic skin condition called Epidermolysis Bullosa (EB).
We’ve started a UK Parliament petition calling for greater support and investment into EB research and treatments. Every single signature helps us get closer to having our voices heard.
It takes less than a minute to sign, and we’d be so grateful if our local community could get behind Ralph and other families living with EB.
Petition: https://petition.parliament.uk/petitions/775393
Thank you so much 🙏🏼
Source